Founded by husband and wife, Peter and Sharon Stachelek, Team Tamara is named for their daughter, Tamara (diagnosed with Tuberous Sclerosis at 21 months of age). Prior to her diagnosis, no one in her family had ever heard of TSC. Tamara’s TSC was termed mild, however the impact on her, and her family, has been tremendous. Tamara is now 6 years old, and coping with some developmental delays, as well as epilepsy which is a common occurrence among patients with TSC. Team Tamara provides an opportunity to support the organizations which provide so much for these patients and their families, while also raising awareness about the condition itself.

Team Tamara is a registered 501(c)3 nonprofit, staffed by volunteers, with oversight by a Board of Directors. Their mission is raising awareness about Tuberous Sclerosis Complex (TSC), and funds for research and advocacy programs. Team Tamara's fundraising efforts benefit three organizations:

The Children's Hospital of Philadelphia
The Epilepsy Foundation ®
The Tuberous Sclerosis Alliance