THE
CHILDREN'S HOSPITAL OF PHILADELPHIA, Neurology and Endocrinology:
One of the premier pediatric facilities in the United States, CHoP offers
not only diagnostic services, but also follow-up care and support services.
As a teaching hospital, CHoP is on the cutting edge of both research and treatment.
They provide comprehensive treatment to TS patients not only through their
Pediatric Regional Epilepsy Program, but also through coordination of care
with primary physicians, support services, and administration of special programs
such as the Ketogenic Diet (for patients with intractable epilepsy).
EPILEPSY FOUNDATION ®:
The Epilepsy Foundation is the national nonprofit, voluntary organization
leading the fight to ensure that children, and adults, with epilepsy participate
in all life experiences. For 35 years, the Foundation has been committed to
the prevention, control, and cure of epilepsy. Through research, education,
advocacy, and services they strive for a positive quality of life for everyone
whose life is touched by seizures. Nationwide, the Foundation's work is carried
out by a network of almost 60 local Epilepsy Foundations serving 125 communities.
TUBEROUS SCLEROSIS
ALLIANCE: Founded nearly 30 years ago, the TS Alliance offers services
to patients with TSC, their families, and to the health care professionals
charged with their care. Their active research program engages scientists
and clinicians interested in touching the thousands of lives affected by TSC.
The TS Alliance boasts a nationwide network of individuals who participate
by providing access to current research about TSC and its treatment, support
services and groups, government advocacy for increased research funding, and
outreach and awareness programs. Members of the TS Alliance staff are readily
available to provide direction and assistance to efforts like Team Tamara.
© Team Tamara